Ranchi: A state-level meeting of patients and families affected by thalassemia, sickle cell disease, and aplastic anemia was organized at Risaldar Baba Banquet Hall, Doranda, Ranchi, under the joint leadership of the Jharkhand Thalassemia Patients Association and “Lahu Bolega” Blood Donation Organization, Ranchi. On this occasion, gratitude was expressed to the Jharkhand Government for the recent initiatives taken for patients suffering from blood disorders.
The program was chaired by Blood Warrior Nadeem Khan, Founder and State Coordinator of “Lahu Bolega” Blood Donation Organization, Jharkhand Thalassemia Patients Association, and the Jharkhand State Voluntary Organizations Coordination Committee.
The chief guest of the program, Comrade Prakash Viplav, State Secretary of the Communist Party of India (Marxist), Jharkhand, said in his address that diseases such as thalassemia, sickle cell anemia, and aplastic anemia are not only medical issues but also serious social and economic challenges. He stated that raising these issues strongly in the Jharkhand Assembly and the government’s prompt response has brought new hope to patients and their families.
Comrade Viplav emphasized that the state government should formulate a permanent and comprehensive policy for the treatment of these diseases, ensuring
free and regular blood supply, diagnostic facilities, availability of medicines, and proper arrangements for bone marrow transplantation. He also stressed the need to turn blood donation into a mass movement so that no patient loses their life due to the lack of blood.
During the program, the role of Congress Legislature Party Leader and MLA Pradeep Yadav was appreciated for raising the issue of blood disorder patients for the first time in the history of Jharkhand on the floor of the Assembly. Patients and families expressed satisfaction over the announcement made by the Health Minister to implement all necessary measures related to thalassemia, sickle cell disease, aplastic anemia, and blood donation within one month.
On this occasion, the birthdays of two thalassemia patients were also celebrated. A cake was cut for 19-year-old graduate student Sonam Kumari from Ratu, Ranchi, and 5-year-old student Asad Afzar from Irba, Ranchi, and sweets were distributed among the participants.
During the program, temporary Indian Railways concession passes were distributed to thalassemia and sickle cell patients. Applications were also submitted for 50 patients under the Government of India’s NPA Scheme for livelihood support and scholarships. Under this scheme, patients above the age of 13 receive financial assistance of ₹80,000 over two years.
With the support of Delhi Apollo Hospital, Shonit Foundation, and Lahu Bolega, HLA and bone marrow tests were conducted in two camps for patients and their siblings or parents, in which 19 patients were found to have matching donors. This was announced during the program. Bone marrow transplants will soon be carried out with the support of the Jharkhand Government, Government of India, CCL, and various NGOs.
During the meeting, a new 21-member committee of the Jharkhand Thalassemia Patients Association was constituted, with Sanjay Toppo appointed as Male Convenor and Devki Devi as Female Convenor.
The program was attended by Seema Devi, Surjan Bada, Ajit Mishra Pandit, Fariha Bilkis, Puniya Oraon, Jayanath Mahato, Tarannum Parveen, Mona Singh, Brijesh Kumar, Sonam Kumari, Pragati Prakash, Sakshi Singh, Lucky Oraon, Alex Toppo, Akram Rashid, Shahnawaz Abbas, Saniya, along with hundreds of patients and family members from across the state.
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